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Irish Child Health Database - Peer Reviewed Papers

Database Search

• Segregation--the perspectives of young patients and their parents

  Published in:

  J Cyst Fibros, Vol: 5, Page: 93-9

  Publication Date:

  May 2006

  Aims & Objectives:

  The aim of this study was to examine patients and carers' views and to involve them in the process of introducing segregation in a paediatric cystic fibrosis centre

  Abstract:

  BACKGROUND: Segregation is used increasingly to prevent cross infection, yet little is known about service users' views regarding segregation and its perceived impact. The aim of this study was to elicit patients and carers' views and to involve them in the process of introducing segregation in a paediatric CF centre. METHOD: Open-ended questionnaires were posted to all parents (n=192) and to patients over 10 years (n=101). A content analysis identified common themes. Inter-rater agreement about themes was high (83%). RESULTS: Parents (91%) and children (92%) supported segregated treatment. Parents appeared to be aware of the positive and negative aspects of segregation, and to engage in a balancing act that led them to conclude that segregation was a 'necessary evil'. Children appeared to be less analytical and were concerned mostly with boredom and isolation. Age, level of maturity, and hospital experience were perceived to be determinants of patient adaptation to segregation. CONCLUSION: Segregation has considerable emotional, social, and practical implications for patients and families. Obtaining users' views increased our understanding of the psychosocial consequences of segregation and facilitated its implementation.

  Authors:

  K. Russo; M. Donnelly; A. J. Reid

  Study Type:

  Study Papers » Case Study » Descriptive Studies - Without a comparision

  Categories:

  cystic fibrosis

  International Classification:

  Endocrine, nutritional and metabolic diseases - Metabolic disorders - cystic fibrosis

  Keywords:

  • Adolescent
  • Child
  • CHILD psychology
  • Cross Infection/ prevention & control
  • Cross-Sectional Studies
  • Cystic Fibrosis/ microbiology
  • Female
  • Health Knowledge, Attitudes, Practice
  • Hospitalization
  • Humans
  • Male
  • Northern Ireland
  • Parents/ psychology
  • Patient Acceptance of Health Care
  • Patient Isolation/ psychology
  • Patients/ psychology
  • Psychosocial Deprivation
  • Respiratory Tract Infections/microbiology

  
  

  Geography:

  Northern Ireland (Northern Ireland)