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Irish Child Health Database - Peer Reviewed Papers

Database Search

How to use this database.

• Method 1- uses a free natural language approach.

  After choosing the object of the search – by ticking title, abstract, aims and objective, or author - enter a term, word or name in the ‘Search’ box to return references answering your research question.

• Method 2 - utilises key words.

  Those key words assigned from thesauruses of controlled vocabulary by the trained coders of international bibliographic databases.
  The controlled vocabularies key word are listed alphanumerically under 'Bibliographic database keywords' .
  Use the drop down menu to identity which 'key words' you are interested in to return references to answer your research question.

• Method 3 - is based on the indexing system

  developed by the researchers who compiled this database.
  It adopts a thematic approach to mapping Irish child health research. The themed areas represent outcomes mapped to the International Classification of Disease version 10 (ICD-10) or one of 23 other health-related themed outcomes. Themes are defined in Tables 5 to 7 (of the study report).
  Use the alphabetic drop down menu under ‘ICD-10 or themed health-related outcomes’ to identity which themed areas you are interested in to select references to answer your research question.

• Method 4 – allows papers to be searched by Study type.

  Indexing by study type offers a valuable insight into understanding the population impact of the topic of interest. More than 20 study types were identified across the 2,152 study papers. These are defined in Table 3 (of the study report). Within 'Study type' papers are further stratification by geographical region (Table 49), topic area of interest and study aims and objectives.
  Click on 'Study type' to select the type of study of interest, progressively select sub-categories by topic area or other sub-classification of interest to answer your research question.

The complete background, methods and findings from this mapping exercise are detailed in the study report.

Quality of Life

Your search returns 20 documents

• 1.   A cluster randomised intervention trial of asthma clubs to improve quality of life in primary school children: the School Care and Asthma Management Project (SCAMP)

  This study aimed to evaluate the effectiveness of a programme of asthma clubs in improving quality of life in primary school children with asthma

  

  Abstract:

  AIM: To evaluate the effectiveness of a programme of asthma clubs in improving quality of life in primary school children with asthma. METHODS: A cluster randomised intervention trial was undertaken in 22 primary schools within the urban area of south and east Belfast, Northern Ireland. Schools were randomised in pairs to immediate or delayed groups. The study subjects comprised 173 more...

  International Classification:

  Diseases of the respiratory system - Chronic lower respiratory diseases - asthma

  Categories:

  asthma clubs in improving quality of life

  Geography:

  Northern Ireland

  Arch Dis Child, Vol: 90 Page: 786-91 August 2005
  E. E. Patterson; M. P. Brennan; K. M. Linskey; D. C. Webb; M. D. Shields; C. C. Patterson

  [Preview] [Read]

• 2.   Achieving Consensus in Developing a National Set of Child Well-Being Indicators

  This article discusses an account of the methodology used to gain consensus around the development of a national set of child well-being indicators

  

  Abstract:

  The article accounts the methodology used to arrive at a consensus around the development of a national set of child well-being indicators in Ireland. A multi-stage consensual approach was taken to the development of indicators and the Delphi technique was used as an overarching technology for integrating each part. It was found out that the Delphi technique satisfactorily achieve 96% more...

  Geography:

  Republic of Ireland

  Social Indicators Research, Vol: 80 Page: 79-104 2007
  Sinead Hanafin; Anne-Marie Brooks; Ed Carroll; Eithne Fitzgerald; Saoirse Gabhainn; Jane Sixsmith

  [Preview] [Read]

• 3.   An evaluation of positive behavioural support for people with very severe challenging behaviours in community-based settings

  The aim of this study was to examine positive behaviour supports for five people - with intellectual disability - in community settings

  

  Abstract:

  This study employs a multiple baseline across individual design to describe positive behaviour support for five people in community settings. The individuals represent all people with intellectual disability residing in one county with long-standing challenging behaviour resulting in serious physical injury. Five types of outcome are presented: rates of behaviour, rates of medication, more...

  International Classification:

  Mental and behavioural disorders - Mental retardation - intellectual disabilities

  Categories:

  positive behaviour support; intellectual disability

  Geography:

  Republic of Ireland

  J Intellect Disabil, Vol: 11 Page: 281-301 September 2007
  B. McClean; I. M. Grey; M. McCracken

  [Preview] [Read]

• 4.   Background and methods for evaluating quality of life in children and adolescents with diabetes

  This article discusses background and methods for evaluating quality of life in children and adolescents with diabetes

  

  Geography:

  Republic of Ireland

  Acta Biomed, Vol: 74 Suppl 1 Page: 7-12 2003
  H. M. Hoey

  [Preview] [Read]

• 5.   Bilateral thoracoscopic sympathectomy: results and long-term follow-up

  This study evaluated the efficacy of bilateral thoracoscopic sympathectomy in alleviating symptoms and improving quality of life in patients with hyperhidrosis or facial blushing

  

  Abstract:

  The aim of this study is to evaluate the efficacy of bilateral thoracoscopic sympathectomy in alleviating symptoms and improving quality of life in patients with hyperhidrosis or facial blushing and to investigate the occurrence, severity and possible underlying factors to compensatory sweating after surgery. One hundred and sixty-three patients in a single institution underwent more...

  International Classification:

  Symptoms, signs and abnormal clinical and laboratory findings - General symptoms and signs - hyperhidrosis

  Categories:

  hyperhidrosis or facial blushing

  Geography:

  Northern Ireland

  Interact Cardiovasc Thorac Surg, Vol: 7 Page: 67-70 February 2008
  R. Jeganathan; S. Jordan; M. Jones; S. Grant; O. Diamond; K. McManus; A. Graham; J. McGuigan

  [Preview] [Read]

• 6.   Bone anchored hearing aids: Reality, failure and current status

  The aim of this study was to examine the reality, failure and current status of bone anchored hearing aids

  

  Abstract:

  Bone Anchored Hearing Aids have both cosmetic and acoustic advantages over most conventional hearing aids and hence is a popular choice today. We report the first Irish group of patients who received a BAHA over a six year period of time and evaluated outcomes of these subjects using subjective assessment. The medical records of all patients who received a BAHA at the Mater and more...

  International Classification:

  Other - Bone anchored hearing aids

  Categories:

  Bone anchored hearing aids

  Geography:

  Republic of Ireland

  Irish Medical Journal, Vol: 97 Page: 312-314 2004
  A. L. Kadhim; M. P. Colreavy; C. O'Donovan; A. Blayney

  [Preview] [Read]

• 7.   Care of the extremely preterm infant: Management and ethical dilemas

  This article discusses care of the extremely preterm infant

  

  Geography:

  Republic of Ireland

  Irish Medical Journal, Vol: 98 Page: 101-102 2005
  W. A. Gorman

  [Preview] [Read]

• 8.   Cheap listening?--Reflections on the concept of wrongful disability

  This article investigates the concept of wrongful disability. That concept suggests that parents are morally obligated to prevent the genetic transmission of certain conditions and so, if they do not, any resulting disability is 'wrongful'

  

  Abstract:

  This paper investigates the concept of wrongful disability. That concept suggests that parents are morally obligated to prevent the genetic transmission of certain conditions and so, if they do not, any resulting disability is 'wrongful'. In their book From Chance to Choice, Buchanan, Brock, Daniels and Wikler defend the concept of wrongful disability using the principle of avoidability more...

  Geography:

  Republic of Ireland

  Bioethics, Vol: 20 Page: 55-63 April 2006
  R. J. Hull

  [Preview] [Read]

• 9.   Food allergy QoL questionnaire for children aged 0-12 years: content, construct, and cross-cultural validity

  This study developed a sensitive, multi-dimensional measure to assess parental perception of health-related QoL in children aged 0-12 years with food allergy

  

  Abstract:

  BACKGROUND: To date, there is no food allergy-specific questionnaire that allows parents to report children's health-related QoL (HRQL) from the child's perspective. OBJECTIVE: The aim of this study was to develop a sensitive, multi-dimensional measure to assess parental perception of HRQL in children aged 0-12 years with food allergy. METHODS: The Food Allergy QoL - Parent Form more...

  International Classification:

  Diagnostic tool (questionaire/scale) - quality of life

  Categories:

  health-related QoL

  Geography:

  International

  Clin Exp Allergy, Vol: 38 Page: 977-86 June 2008
  A. DunnGalvin; B. M. de BlokFlokstra; A. W. Burks; A. E. Dubois; J. O. Hourihane

  [Preview] [Read]

• 10.   Food poverty and health among schoolchildren in Ireland: findings from the Health Behaviour in School-aged Children (HBSC) study

  The aim of this study was to investigate the relationships between food poverty and food consumption, health and life satisfaction among school children

  

  Abstract:

  OBJECTIVES: To investigate the relationships between food poverty and food consumption, health and life satisfaction among schoolchildren. DESIGN: Analysis of the 2002 Health Behaviour in School-aged Children (HBSC) study, a cross-sectional survey that employs a self-completion questionnaire in a nationally representative random sample of school classrooms in the Republic of Ireland. more...

  International Classification:

  Diet and lifestyle

  Categories:

  food poverty; food consumption; health; life satisfaction

  Geography:

  Republic of Ireland

  Public Health Nutr, Vol: 10 Page: 364-70 April 2007
  M. Molcho; S. N. Gabhainn; C. Kelly; S. Friel; C. Kelleher

  [Preview] [Read]

• 11.   Good metabolic control is associated with better quality of life in 2,101 adolescents with type 1 diabetes

  The aim of this study was to assess if good metabolic control or the consequences of poor control have a greater influence on quality of life of adolescents with diabetes and their families

  

  Abstract:

  OBJECTIVE: It is unclear whether the demands of good metabolic control or the consequences of poor control have a greater influence on quality of life (QOL) for adolescents with diabetes. This study aimed to assess these relations in a large international cohort of adolescents with diabetes and their families. RESEARCH DESIGN AND METHODS: The study involved 2,101 adolescents, aged 10-18 more...

  International Classification:

  Endocrine, nutritional and metabolic diseases - Diabetes mellitus diabetes mellitus

  Categories:

  metabolic control; quality of life

  Geography:

  International

  Diabetes Care, Vol: 24 Page: 1923-8 November 2001
  H. Hoey; H. J. Aanstoot; F. Chiarelli; D. Daneman; T. Danne; H. Dorchy; M. Fitzgerald; P. Garandeau; S. Greene; R. Holl; P. Hougaard; E. Kaprio; M. Kocova; H. Lynggaard; P. Martul; N. Matsuura; H. M. McGee; H. B. Mortensen; K. Robertson; E. Schoenle; O. Sovik; P. Swift; R. M. Tsou; M. Vanelli; J. Aman

  [Preview] [Read]

• 12.   Healing old wounds. Interview by Catharine Sadler

  This article discusses "Healing old wounds"

  

  Geography:

  Republic of Ireland

  Nurs Stand, Vol: 15 Page: 14-6 2001 Jun 27-Jul 3
  S. Peake

  [Preview] [Read]

• 13.   Health status of children with cerebral palsy living in Europe: a multi-centre study

  This aim of this study was to describe the health status of 8-12-year-old children with cerebral palsy of all severities in Europe using the Child Health Questionnaire

  

  Abstract:

  Aim The aim of this report is to describe the health status of 8-12-year-old children with cerebral palsy (CP) of all severities in Europe using the Child Health Questionnaire (CHQ). Method A total of 818 children with CP from nine centres in defined geographical areas participated. CP type, gross and fine motor function, additional impairments were classified and family data were more...

  International Classification:

  Diseases of the nervous system - Cerebral palsy and other paralytic syndromes - cerebral palsy

  Categories:

  health status; cerebral palsy

  Geography:

  International

  Child: Care, Health & Development, Vol: 34 Page: 806-814 2008
  E. Beckung; M. White-Koning; M. Marcelli; V. McManus; S. Michelsen; J. Parkes; K. Parkinson; U. Thyen; C. Arnaud; J. Fauconnier; A. Colver

  [Preview] [Read]

• 14.   Ireland's National Children's Strategy an inside outsider's view

  This article focused on the launching of Ireland's National Children's Strategy: Our Children--Their Lives

  

  Abstract:

  Focuses on the launching of Ireland's National Children's Strategy: Our Children--Their Lives. The growth in the Irish economy and accompanying changes in society have created opportunities and challenges for children. Social investment is seen by government as vital to continuing success and nowhere is that investment more important than in children. It is realistic to aspire to more...

  Geography:

  Northern Ireland

  Children & Society, Vol: 15 Page: 118-121 2001
  John Pinkerton

  [Preview] [Read]

• 15.   Link Family Support--An evaluation of an in-home support service

  The aim of this study was to describe home support services with a sample of families of service users of Enable Ireland Cork

  

  Abstract:

  A significant body of research has shown that parents who have a child or a dependent adult with a disability experience significant and persistent levels of stress. One of the recognized strategies for coping includes the provision of in-home practical support. Enable Ireland provides a range of services for children and adults with a physical disability. The present study explored more...

  International Classification:

  Other - home support services

  Categories:

  home support services

  Geography:

  Republic of Ireland

  Journal of Psychiatric and Mental Health Nursing, Vol: 11 Page: 698-704 2004
  H. Forde; H. Lane; D. McCloskey; V. McManus; E. Tierney

  [Preview] [Read]

• 16.   Living in critical times: The impact of critical incidents on frontline ambulance personnel--a qualitative perspective

  This study aimed to explore through interview the nature and impact of Critical Incidence on health and well-being and to examine attitudes toward support services and barriers to service use

  

  Abstract:

  Little is known about the impact of Critical Incidents (CIs) on the lives of ambulance personnel. One-to-one interviews were conducted with 27 participants who had experienced CIs during the previous 12 months in order to: assess the nature and impact of CIs on health and well-being; examine attitudes toward support services; and explore barriers to service use. The results showed that more...

  International Classification:

  Practice/knowledge - Critical Incidents

  Categories:

  Critical Incidents

  Geography:

  Republic of Ireland

  Int J Emerg Ment Health, Vol: 9 Page: 215-23 2007 Summer
  S. Gallagher; S. McGilloway

  [Preview] [Read]

• 17.   Parent and health professional perspectives in the management of adolescents with diabetes: development of assessment instruments for international studies

  The aim of this study was to assess quality of life in adolescents with diabetes

  

  Abstract:

  OBJECTIVE: Assessment of quality of life (QOL) in adolescents with diabetes requires patient, parent and health professional input. Psychometrically robust instruments to assess parent and professional perspectives are required. RESEARCH DESIGN AND METHODS: Questionnaires concerning adolescent QOL were developed for completion by parents and health professionals. In an international more...

  International Classification:

  Endocrine, nutritional and metabolic diseases - Diabetes mellitus diabetes mellitus

  Categories:

  diabetes

  Geography:

  International

  Qual Life Res, Vol: 15 Page: 1033-42 August 2006
  H. Hoey; H. M. McGee; M. Fitzgerald; H. B. Mortensen; P. Hougaard; H. Lynggaard; S. E. Skovlund; H. J. Aanstoot; F. Chiarelli; D. Daneman; T. Danne; H. Dorchy; P. Garandeau; S. Greene; R. Holl; E. Kaprio; M. Kocova; P. Martul; N. Matsuura; K. Robertson; E. Schoenle; O. Sovik; P. Swift; R. M. Tsou; M. Vanelli; J. Aman

  [Preview] [Read]

• 18.   Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study

  The aim of the study was to compare Quality of life among individuals with Cerebal Palsy

  

  Abstract:

  Background: Little is known about the quality of life (QoL) of disabled children. We describe self-reported QoL of children with cerebral palsy, factors that influence it, and how it compares with QoL of the general population. Methods: 1174 children aged 8-12 years were randomly selected from eight population-based registers of children with cerebral palsy in six European countries and more...

  International Classification:

  Diseases of the nervous system - Cerebral palsy and other paralytic syndromes - cerebral palsy

  Geography:

  International

  Lancet, Vol: 369 Page: 2171-2178 2007
  H. O. Dickinson; K. N. Parkinson; U. Ravens-Sieberer; G. Schirripa; U. Thyen; C. Arnaud; E. Beckung; J. Fauconnier; V. McManus; S. I. Michelsen; J. Parkes; A. F. Colver

  [Preview] [Read]

• 19.   The Impact of Formal Services on Family Carers of Individuals with Intellectual Disability

  The aim of this study was to describe findings of interviews carried out with primary carers of individuals with an intellectual disability living in a rural area of the Republic of Ireland.

  

  Abstract:

  Service planners are interested in the impact of formal services on the lives of individuals with intellectual disabilities, and also on the quality of life of family carers. This article reports the findings of interviews carried out with primary carers of individuals with an intellectual disability living in a rural area of the Republic of Ireland. Two groups of carers--seventeen more...

  International Classification:

  Mental and behavioural disorders - Mental retardation - intellectual disabilities

  Categories:

  intellectual disabilities

  Geography:

  Republic of Ireland

  Irish Journal of Psychology, Vol: 25 Page: 26-43 2004
  Linda Finnegan; Barbara Dooley; Patricia Noonan Walsh

  [Preview] [Read]

• 20.   The Revised-Perceived Illness Experience Scale (R-PIE): data from the Barretstown studies

  The aim of this study was to describe previously uninvestigated factor structure of the Perceived Illness Experience with life-threatening illnesses

  

  Abstract:

  The Perceived Illness Experience Scale (PIE) was developed to measure children's perception of their illness experience. In this article, the authors examine the previously uninvestigated factor structure of the PIE using the responses of 184 European children (mean age = 11.61 years, SD = 2.31) with life-threatening illnesses. The findings showed a 6-factor solution: (1) School/Peer more...

  International Classification:

  Bullying

  Categories:

  Perceived Illness Experience with life-threatening illnesses

  Geography:

  International

  Behav Med, Vol: 30 Page: 23-31 2004 Spring
  G. Kiernan; M. Gormley; M. MacLachlan

  [Preview] [Read]