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Irish Child Health Database - Peer Reviewed Papers

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  • Participation in a clinical trial: views of children and young people with diabetes

    Published in:

    Paediatr Nurs, Vol: 19, Page: 37-9

    Publication Date:

    July 2007

    Aims & Objectives:

    This study investigates whether involvement in research can have a positive effect on the education and management of disease of children and young people with diabetes

    Abstract:

    AiM: To investigate whether involvement in research can have a positive effect on the education and management of disease of children and young people with diabetes. METHOD: Children's and young people's experiences of exposure to intensified intervention during a clinical trial were examined by a questionnaire given to 44 young patients with type 1 diabetes from the UK and Ireland. The young people had participated in a trial comparing specific insulin regimes. Most patients were obliged to increase injection frequency, clinic attendance, glucose monitoring and diary entries. FINDINGS: Of the 44 patients, 36 completed the questionnaire. Most, including the younger children, did not regard basal-bolus therapy, additional injections or intensified self-monitoring as barriers to self-management. They also believed that the management of their diabetes was further supported as a result of increased contact and intensive insulin management. Many of the children participating in this study felt they had learned something about their diabetes, and, furthermore, almost all opted to remain on an intensive treatment regimen. CONCLUSION: These results suggest that trial involvement benefits the young person's approach to self-management of diabetes.

    Authors:

    C. McGuinness; M. Cain

    Study Type:

    Study Papers » Qualitative Study » Qualitative Studies

    Categories:

    involvement in research and the effect on education

    International Classification:

    Education

    Keywords:


    Geography:

    Republic of Ireland and the United Kingdom ( UK and Ireland)