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SCPE work, standardization and definition--an overview of the activities of SCPE: a collaboration of European CP registers
Published in:
Chin J Contemp Pediatr, Vol: 8, Page: 261-5
Publication Date:
August 2006
Aims & Objectives:
The aim of this study was to examine the epidemiology of cerebral palsy in Europe and the Surveillance of Cerebral Palsy in Europe (SCPE) network
Abstract:
The main aim of the Surveillance of Cerebral Palsy in Europe (SCPE) network was to develop a central database of cerebral palsy (CP) cases across Europe. Monitoring trends in prevalence rates of CP should contribute to collaborative studies on risk factors or quality of life for children living with CP. A multi-centre collaboration of CP registries used a clear definition of CP to accurately and consistently identify cases of CP. The rate of CP within the collaboration varied from 1.5 to 3 per 1000 live births. For the birth cohort 1980 to 1996 (n=9128), 53.9% of the CP children had a bilateral spastic CP, 31.0% had unilateral spastic CP, 6.6% were dyskinetic and 4.1% ataxic. Among CP children, 20.4% had a birth weight less than 1500 g and 25.5% were born before 32 weeks gestational age. Intellectual impairment corresponding to an IQ<50 was found in 29.5% of CP children. The proportion of CP children unable to walk, even with aids, was 30.3%. Twelve and a half percent of CP children were known to have a severe visual impairment. It was concluded that registers are the best means to implement epidemiological research into CP.
Authors:
Study Type:
Study Papers » Epidemiology - descriptive, incidence, prevalence and/or trends » Descriptive Studies - With a comparative dimension: time, geography, treatment, procedures
Categories:
cerebral palsy
International Classification:
Diseases of the nervous system - Cerebral palsy and other paralytic syndromes - cerebral palsy
Keywords:
Geography:
International (cases across Europe)